UPDATE from ER Visit

I've had so many people reach out about my Vivian. It is amazing how many hearts she has touched but I can barely make all the official phone calls.. soooo

Here is your update on my sweet baby:
She's perfect. And sweet. And has no idea she is making her mom a crazy person.
You know when the doctor says "Watch for "xyz". Well, now imagine it is your baby.. and multiply it times a million (cuz I'm crazy).

 They told me to "watch her bowel and bladder habits". So, I did. Like a neurotic hawk, I kept an eye on it.

"Do you need to pee? Do you need to poop? Jake, when did you change her diaper last? Did your parents change it? Was it normal? Did it smell? Did it look like it hurt her? Viv, does your belly hurt? Your back? Does it feel funny *down there*?"

Thank God, Alyssa (daycare) watches them, knows I'm crazy and brought it to my attention things were't normal.
So, after keeping an eye on it.. I took her to the ER.

For the most part, things were normal. Her kidneys are good (which is what I stress about the most... I want NO long term side effects from this).. no UTI.. she has reflux and the immediate ultrasound showed urine backing up to her kidneys (cue breakdown)... but the official ultrasound looked OK.

Urology is still giving me time to strengthen her legs in hopes it will strengthen the nerves effecting her bladder. If not, in March, catheterization begins. Because, basically her bladder squeezes, so does her "sphincter", increasing the pressure in her bladder.. and because she has reflux, it shoots urine back towards the kidneys. If her kidneys become damaged, the only thing we can do is a transplant or dialysis. No and no. So, they would put her on a medication to decrease the pressures buuut she couldn't pee on her own. Life changing, yes. Buuuut... it would save her kidneys and could be short term (a year, maybe?). And that would have no long term effects if it works. Do I want that to be the answer? No. NO! Remember guys, I want my baby to be untouched from that stupid effing tumor. I just want this nightmare to be OVER. Why is it dragging on and on and on...

Neurosurgery is concerned.. which has me concerned.
Why did she start retaining urine over the weekend? The only thing that changed is coming out of her brace.
Xray looks good. MRI next week to check.
I hate that his mind goes there. Better safe than sorry.. but... ugh.

So.. my options appear to be... cath my kid, put rods/pins in my kid or there be some kid of mass that's causing issues (unlikely)...

I'll take option D. God's got this. He just hasn't finished His miracle yet.